The scientific committee.

The role is to define the purpose of the clinical trial, to write the protocol, to propose the protocol modifications during the trial. It is composed of the best experts of the pathology.

The methods.

  • The data collection : the study is both retrospective and prospective.
  • Patient database : More than 2000 patients already identified at the reference centre of the CHU Henri Mondor.
  • Process & standards : MR001 reference methodology.
  • Certification : Linked to the SNIRAM for validation of socioeconomic data.

Our data collection process

The data will be collected via an eCRF provide by Medsharing.

Compliance and our private privacy policy

Documentation registry

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  • Access to HEART's annual report
  • Access to the patients data and Dashboard
  • Access to the product data ans Dashboard
  • Access to the Scientific Research Projects details
  • Get ONE seat at the Industrial committee
  • On-demand reports (with Extra charge)

GOLD Partners

JOIN our community
  • Access to HEART's annual report
  • Access to the patients data and Dashboard
  • Access to the product data ans Dashboard
  • Access to the Scientific Research Projects details
  • Get ONE seat at the Industrial committee
  • On-demand reports (free)

Healthcare European Amyloidosis Research Translation and strategy

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