Together, we can stop Amyloidosis

The HEAR registry, at the core of our research mission.

Collected at our centers throughout France, the HEAR registry provides detailed data that will help us fight amyloidosis together.

Our research improves lives.

Better Diagnosis

Developing innovative tools to provide faster and more accurate diagnoses.

Better Treatments

Finding new methods to slow down and eliminate fiber deposits in the organs as well as minimize and eliminate symptoms.

Better Pronostics and Follow-up

Creating more accurate personalized follow-up for individual patients, as well as providing a better understanding of the disease to caregivers.

Our key milestones.

December 2018

Création of the foundation.

January 2019

Drafting the study documents.

February 2019

Creation of the CRO.

March - June 2019

Building partnerships.

June 2019

Finalisation of the scientific committee

September 2019

Regulatory authorizations.

November 2019

Launch of HEAR.

Our partners | Our donors.

Building a healthier future

Reach Out

To learn more about how our research is making a difference for those living with amyloidosis.

Healthcare European Amyloidosis Research Translation and strategy

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+33 (0)1 49 81 22 53

Healthcare European Amyloidosis Research Translation and strategy
19, rue de Fontenay 94300 VINCENNES

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